On September 12, 2006, AHIMA/FORE released a report produced under contract with the Office of the Network Coordinator. The report is entitled Development of State-Level Health Information Exchange Initiatives.
The findings are fairly straightforward:
- Most state-level HIE initiatives are still in an early stage of development;
- They differ in their origins, drivers, and goals;
- They reflect the uniqueness of their market characteristics;
- They used a wide variety of approaches;
- They are all rapidly evolving organizations committed to improving healthcare in their states.
Among the key recommendations are the following FIVE:
I. Institute mechanisms to promote strategic synergy between state and federal health information exchange (HIE) agendas and initiatives:
- Establish a coordinating body to promote communication and collaboration among states and between states and federal agencies to advance HIE. This coordinating body will address areas of concern and opportunities for effective action through collaboration. It will ensure clear communications with and among states and a voice for state issues in the federal agenda. Consider how the American Health Information Community and Office of the National
- Coordinator can work with state and national policy makers to address the barriers state-level HIE initiatives encounter.
- Develop mechanisms to engage state-level HIE initiatives in the development and deployment of relevant federal initiatives, including feedback on the effect of the federal HIT and HIE agenda.
II. Identify salient financial models for sustainable HIE that state-level HIE initiatives can apply:
- Inventory and describe in detail HIE projects that have achieved financial sustainability and are demonstrating positive outcomes or appear to have identified sufficient revenues and cost data to argue for financial sustainability.
- Identify revenue models currently in use that have generated real savings or revenue and improvement.
- Analyze the programmatic details of each model.
- Describe pros and cons for each: ease of implementation, the infrastructure needed, requisite state-level policy features, the critical mass of stakeholders that need to be involved, the market characteristics that make the model feasible, how healthcare is affected or improved, the estimated costs and revenue from the model, and the expected timing for design and implementation.
- Recommend implementation approaches.
- Identify the top few most feasible options for early successful HIE implementation.
- Identify models the complexity and cost of which suggest that they be deferred.
- Recommend how to disseminate these results.
III. Conduct an analysis in the areas listed below to understand and leverage the role and influence of public and private payers in advancing HIE initiatives, and develop and implement a payer involvement strategy for HIE.
- Roles payers (public and private) have in statewide and local HIE initiatives:
The criticality of involving payers (public or private),
When engagement is most beneficial, How to engage payers
The feasibility of a national strategy to create common methodologies for payer contribution to HIT financing.
- The importance of state Medicaid and Medicare programs’ participation in state-level HIE initiatives:
Ways in which Centers for Medicare & Medicaid Services CMS) policy might accelerate or constrain the ability of state Medicaid to take actions to facilitate HIE.
Identify how to engage CMS and other public payers early in the design process to ensure aligned agendas.
How adoption of Medicaid Information Technology Architecture (MITA) affects HIE.
Identify how to ensure integration of Medicare and Medicaid population data for HIE purposes.
Make recommendations for any federal statutory changes that may be necessary to integrate Medicaid and Medicare in this way.
- The private payer perspective (including traditional health plans and self-funded plans):
Business goals, strategic direction, collaborative and competitive advantage as it relates to multi-stakeholder HIE.
Specifically consider how the evolution of payer-sponsored personal health records (PHRs) may affect HIE initiatives.
- Identify ways for payers to collaborate and support HIE.
- Identify and describe risks that payers may inhibit HIE or block innovation.
- Identify and consider any limitations or downsides of market-driven evolution of HIE with respect to payers.
- How public payers influence and affect private payer behavior.
- How states’ payer mix affects HIE (e.g., number of payers, types of payers, respective market share).
- The effect of federal regulation of employer benefits (e.g., mployee Retirement Income Security Act (ERISA), Health Insurance Portability and Accountability Act of 1996 (HIPAA) and other regulations on state-level HIE.
- The role of public employee and retiree coverage and care (e.g., U.S. Department of Veterans Affairs, U.S. Department of Defense, federal employee program, state employee program) in HIE.
IV. Advance understanding of how state policy makers and government can best be involved in state-level HIE initiatives:
- Identify the most feasible and productive ways for state governments and policy makers to provide leadership for HIE.
Should the state designate the state-level HIE initiative?
If so, how is this best accomplished (e.g., governor, Department of Health, Medicaid, state legislature, state licensure division, by means of consensus, bidding, appointment)?
State government should communicate internally and coordinate between the various state agencies and departments to develop and implement a unified approach for the state HIE agenda and collaborate on ways to reduce internal barriers to statewide HIE.
- Develop models of how state government can collaborate with the private sector to develop public-private vehicle to advance HIE, including:
How to engage state government while remaining flexible to respond to market demands for healthcare (e.g., healthcare costs, availability, quality, effect on business climate).
Role of state government in the relationship (e.g., more as a regulator or more as a partner similar to economic development function). Consider the minimal role that state government can play in creating an environment for engaging portions of the private sector that can respond to market demand issues.
Options for formal entities or vehicles that involve public and private sectors in HIE, including pros and cons of each.
How to take advantage of opportunities available only to a state-level
public-private HIE initiative.
Examine what has worked in other industries.
How to maintain the necessary balance required to grow the public-private
partnership.
Consider developing standard language that federal, state, and other purchasers of healthcare can include in their contracting cycle to facilitate the deployment of HIT and ensure interoperability while not negatively affecting the business climate unnecessarily.
- Engage with NCSL, National Governors’ Association (NGA), and other key stakeholder groups to discuss these issues.
V. Develop ways to support state-level HIE initiatives, including:
- Develop a plan for creating a “learning community” of state-level HIE initiatives:
Accelerate information sharing through education and communication mechanisms, such as webinars, discussion forums, listserv, periodic meetings(e.g., regional, national, quarterly, annually).
Continue to refine the State-Level Health Information Exchange Initiative Development Workbook developed through this project and/or create supplementary
tools based on it.
Examples of such tools include PowerPoint presentations, consumer-education booklets, and other materials deemed valuable by the state.
Explore development of a Web site as a resource.
Consider developing content to educate all stakeholders on the benefits of HIE, framing it as a global healthcare and economic issue rather than simply a technology initiative.
- Determine the ways to reach out to and engage states in the learning community through coordinated efforts of various entities (e.g., through NGA, NCSL).
- Support for HIE Executive Directors from initial formative stages through more advanced operations of the state-level HIE initiative through consulting, mentoring, and formal training resources.