http://www.markfrisse.info/
http://www.markfrisse.info/
States offer ONC some RFP advice
To this writer - who has spent untold days weaving through these documents - the overall aims of the NHIN proposal are laudable but the comprehensives scope suggests attaining results through even a multi-year contract will be a challenge. Core infrastructure issues are addressed and are essential, but the devil is in the details, and woven through the many guideline documents and complex uses cases, there are plenty of details.
The problem, it appears to this writer, is an inability to distinguish clearly between the interesting and the acutely important features of a nation-wide health information infrastructure based on the political and technical realities of Year 2007 health care.
At the same time, it is equally unclear what a "state health information exchange" really is, since like the NHIN RFP, these are aspirations more than realities. Ironically, the state health information exchange group representative of this note got its start as part of an ONC-funded AHIMA project that wanted to study the best practices of the self-sustaining state-level RHIOs. Again, this concept is laudable aspiration more than a reality.
In short? There is much work to do, and focusing on the immediate, vital needs seems to be the best strategy.
Portions of the PDF letter (addressed to an ONC contracting officer) are quoted herein verbatim.
This letter is forwarded to you as written documentation of issues and comments offered to the National Coordinator for Health Information Technology by several leaders of state level health information exchange entities and initiatives. The individuals offering this input are members of the State Level Health Information Exchange Consensus Project (SLHIE project) Steering Committee who participated in a teleconference with the Coordinator’s office during the SLHIE project’s recent meeting on June 27, 2007.
The SLHIE Steering Committee consists of representatives from 11 states, two of whom were not represented during the teleconference. As leaders of state level HIEs, those who participated in the call are committed to the vision for achieving a national health information network and appreciate the leadership of the ONC staff as it works toward realizing a national network of networks. At the same time, the group is very concerned that the current ONC NHIN contract RFP does not effectively align the national agenda with what states need most at this time to move health information exchanges from their current formative, development stage to production information exchange operating units. Of the nine states participating in the call, six indicated that they would not be submitting proposals for the NHIN contract, one stated that it will finalize a decision within the next 24 hours and two are going forward with the development of proposals.
The core concerns with the current NHIN contract RFP that were highlighted during the call as driving factors in the decision to not go forward with statewide proposals include:
- The development of health information exchange remains a bottom up process that will grow in to a nationwide network over time. The focus of the current NHIN contract RFP on demonstration of the federally defined use cases does not meet the immediate needs of local, regional and statewide exchange initiatives still struggling with more fundamental issues of how to exchange data, how to accomplish process interoperability, how to develop consumer and other stakeholder buy-in, and how to build out sustainable business models.
- The focus of the RFP on demonstrating the use cases now does not provide the flexibility to individual health information exchanges to focus on what they deem to be their critical path requirements to becoming operational.
- The use cases do not translate into products and services for health information exchanges that generate sustainable business solutions and the growth of state level HIE.
- Funding the growth of health information exchange at the local, regional and statewide levels is the correct focus of priority for ONC to accomplish implementation of a national health information network. To assure the highest probability for success going forward, we believe that ONC should consider expanding the pool of money committed to this funding on an annual basis and enlarge the flexibility of contract terms determining how individual HIE initiatives might creatively work toward a common federal goal. While prescribing strategic objectives and rendering interoperable standards are extremely valuable, prescribing tactical details can be counterproductive and met with unintended and predictable local and state objections, despite Grantee goodwill. The RFPs and Grants should have “play” built into them allowing individual HIEs space for community customization.
- Expand the federal HIE development timeline and funding plan. The current NHIN contract is too aggressive in terms of scope of deliverables and time to delivery to assure the time needed for developing HIEs to mature and solidly address basic exchange challenges.
- Consider defining optional near term minimum clinical data sets as the focus for health information exchanges in their initial development that encourages incremental growth toward the broader use case data sets over time.
- Focus funding on promoting the adoption of concrete tools that increase the probability of HIE initiative success such as use of the e-Health Initiative Value and Sustainability model as a foundational strategy for developing an HIE.
- Focus funding priorities on HIEs achieving business sustainability in how they approach data exchange, develop legal frameworks and encourage stakeholder investment and develop sound business models. Consider incubation grants that require Value and Sustainability Model based community business cases.
- Review and address the incompatibilities of the federal contracting requirements with state contracting requirements for multiple bidders on state sponsored projects.
- Harmonize the federal HIE agenda with the practical needs of statewide health information exchange projects. Consider using a group like the State Level Health Information Exchange Consensus Project Steering Committee as a resource for reviewing and commenting on draft contract proposals and funding priorities.
- Harmonize the development and timing of federal contracts and grants focused on promoting health information exchange. Currently there does not appear to be a common federal vision for health information technology adoption and health information exchange priorities shared between federal departments and agencies. This lack of harmonization has resulted in multiple, unaligned grant and contracting RFPs being issued at the same time over the past ninety days.
- For the current NHIN contract cycle, consider holding back a portion of the total funds available to explore promoting some near term trial implementations that address demonstration of some of the basic start up HIE objectives outlined above.
The signatories represented The Rhode Island Quality Institute, the Tennessee eHealth Council, the Massachusetts Health Data Consortium, the Maine HealthInfoNet, the Colorado Regional Health Information Organization, CalRHIO, Florida’s Agency for Health Care Administration, and the Utah Health Information Network
iHealthBeat Readers - Look Elsewhere
http://www.markfrisse.info/
Medicaid Transformation Grants, 2007
State Name | Project Name | Total Funded |
Together for Quality - Health Information Systems | $7,587,000 | |
Medicaid Health Information Exchange Utility Project | $11,749,500 | |
Electronic Verification of Proof of Citizenship | $285,513 | |
Health Information Exchange and e-Prescribing | $5,000,000 | |
Comprehensive Medicaid Integration (Patient Data Hub) | $9,864,000 | |
GenRx Expansion | $1,737,861 | |
Open Vista ASP Network | $3,188,535 | |
Predictive Modeling System | $4,849,200 | |
Medicaid Estate Recovery Centralization and Automation Project | $124,880 | |
Using Predictive Modeling Technology to Improve Preventive Healthcare in the Disabled Medicaid Population | $906,664 | |
Health Information Partnership | $4,987,583 | |
Automated Fraud and Abuse Tracking | $576,228 | |
Secure Verification of Citizenship through Automation of Vital Records | $3,950,440 | |
One Source Credentialing | $5,208,759 | |
Expansion of Vital Records Automation and Integration Into Medicaid | $3,929,317 | |
Communication and Accountability for Primary Care System (CAPS) | $2,843,340 | |
As One - Together for Health | $1,688,000 | |
Enhancing EHR - Clinical Decision Making | $1,481,152 | |
Medical Information for Children | $1,516,900 | |
e-Prescribing | $855,220 | |
Electronic Health Record Project | $712,301 | |
Fingerprint Authentication at Point of Service | $5,500,000 | |
Web-based Electronic Pharmacy Claim Submission Interface | $75,000 | |
IT Infrastructure Transformation | $725,253 | |
Electronic Prescription Pilot Project | $674,204 | |
Electronic Health Passport for Foster Care | $4,000,000 | |
Developing a Pharmacotherapy Risk Management System with an Electronic Surveillance Tool | $2,881,662 | |
Healthier Medicaid Members through Personal Responsibility | $1,937,110 | |
Healthier Medicaid Members through a Stronger Medicaid Program | $1,731,680 | |
Healthier Medicaid Members through Health Systems Improvement | $3,895,730 | |
Healthier Medicaid Members through Applied Technology | $1,766,280 | |
Healthier Medicaid Members through Enhanced Medication Mgmt | $4,287,110 | |
Health Information Exchange Initiative | $3,043,272 | |
Total | $103,559,694 |
General Resources
Privacy
- HealthPrivacyProject State Law Summaries
- HIPAAadvisory.org State and Federal Privacy Laws and Preemption Analyses site. Sponsored by Phoenix Health Systems
- HHS / CMS Health Privacy Answers Site.
- Center for Law and the Public's Health Model State Public Health Privacy Act (1999)
Medicaid
Quality
AHRQ National Healthcare Quality Report - States
Public Health
The Center for Law and the Public's Health (Georgetown and Johns Hopkins Universities)
E-prescribing
Arizona
The Director of the Government Information Technology Agency (“GITA”) shall convene a Call to Action Summit of health care industry executives, technology leaders, content experts, major employers, community leaders and interested government agencies within sixty (60) days of the execution of this Order to solicit input and participation in the creation of an e-health information infrastructure for Arizona.
A Steering Committee for Arizona Health-e Connection (the “Steering Committee”). The Steering Committee shall comprehensively review issues surrounding the creation of an e-health information infrastructure in Arizona and develop guidance (to be known as the “Arizona Health-e Connection Roadmap”) for the users of such infrastructure.
Defining the composition of the Steering Committee Task groups within the Steering Committee shall be formed to develop recommendations for:
- Identifying existing e-health resources, including funding sources, to support the development of a statewidee-health information infrastructure;
- Identifying technology options, and their advantages and disadvantages, for a statewide e-health information infrastructure;
- Identifying options for serving consumer health information needs;
- Ensuring health information privacy and security in electronic health information exchange;
- Facilitating statewide adoption of electronic health record standards to enable health information exchangeacross the state and nationally;
- Creating organizational and governance structures for a statewide e-health information infrastructure.
Follow this link for Arizona's Executive Order 2005-25
Follow this link for the resulting Road Map
Follow this link for an NGA Summary
California
California Health Care Reform
The California Healthcare Foundation has a site devoted to this topic.
Follow this link to the CHCF healthcare reform site
California Executive Order s-12-06 (25-July, 2006)
Follow this link for the full executive order
- This order recognizes the need for availability, privacy, safety, coordination, rural outreach, consumer access and goal of 100% EMR in 10 years.
- Convenes an eHealth Action Forum to support state policy agenda for HIT.
- Charges agencies to allocate at least $200 million in investment funds to supplement the $40m in grant monies already secured
- Charges the group to identify a sustainable business model
- Set forth a set of goals for the eHealth Action Forum with the intent of setting forth action by July 1, 2007
SB 1338 - Health Information Infrastructure Program
SB 1338, as introduced, Alquist California Health CareInfrastructure Authority. This bill would require the the State Department of Health Services and the California Health and Human Services Agency to jointly establish and operate the California health care information infrastructure program in consultation with thedepartment and the California Department of Managed Health Care . The bill would require the agency to develop a plan to ensure that every Californian will have an electronic health care record by the year 2010, and would specify the required contents of the plan. The bill would set forth the other responsibilities of the agency, including conducting research, implementing pilot projects as necessary, and pursuing a waiver to enable the Medi-Cal program to participate inthe statewide information technology infrastructure under the bill. This bill would authorize the agency to receive various forms of state, federal, and private funding for purposes of the bill. It would require the authority to submit an annual report of its activities to the Governor and the Legislature.
Inventory of California Initiatives
CalRHIO has published an inventory of initiatives within the state. I is a 49-page document in PDF format.
Privacy Laws and Proposed Legislation
- Identity Information Protection Act of 2006 (SB 768)
- Follow this link for the PDF Inventory
- Follow this link for the CalRHIO Home page
CalRHIO's data standards were published in April, 2006.
Summaries of other initiatives and efforts will be added to this section at a later date.
CalRHIO ED Project
The California Regional Health Information Organization is seeking information regarding the implementation of an interoperable Emergency Department Linking (ED Linking) framework throughout the state of California.
This Request for Information (RFI) addresses the goal of interconnecting clinicians and other data sources by seeking solutions for how interoperability of health information technologies and health information exchange can be achieved in Emergency Departments in the state of California. A use case and requirements document accompany this RFI to inform respondents of the type of data exchange a proposed framework should be able to achieve.
All Information can be found at the CalRHIO site.
California Health Care Foundation's October 2006 Report on Health IT for California
The California HealthCare Foundation (CHCF) has released an issue brief outlining ten key recommendations to help transform health care in the state through adoption and effective use of health information technology. The recommendations will be presented Thursday, Oct. 12, at Governor Schwarzenegger's eHealth Action Forum. The report is entitled: "California can lead the way in health information technology."
The press release identifies six "leverage points":
- Empower California’s consumers with information about their health care providers, health insurers, and their own personal health care, with stringent safeguards to ensure privacy and confidentiality;
- Equip providers, especially those who care for underserved populations, with effective and affordable health IT tools to improve performance and efficiency of clinical care;
- Educate and expand California’s health care workforce in the use of IT
- Build a robust infrastructure that will keep Californians safe in the event of an emergency and serve as a foundation for transforming health care
- Provide leadership that will coordinate the health IT activities of the state’s many departments and programs and align public and private sector actions
- Support investments that recognize the social good that can come from targeted applications of health IT.
They issued 10 recommendations:
- Recommendation 1: Support the right of Californians to securely access and control their personal health information. Adopt policy and legal changes to ensure consumers have access to and control over t heir personal health information. Definite the obligations of providers, payers and other stakeholders to provide Californians with electronic access to portable, secure, and affordable personal health information. Californians should have the right to store their own information directly, or with a custodian of their choice, based on their interests and preferences.
- Recommendation 2: Provide Californians with easy-to-understand, comparative information about health care quality and cost. Expand existing public and private efforts to provide consumers access to the information they need to make informed decisions about their health care providers and health plans. This is feasible only if health care information is collected, sorted and analyzed electronically. Use the purchasing power of the state to crate incentives for providers and health plans to provide this information, and report their degree of participation to Californians.
- Recommendation 3: Close the health IT gap for community clinics, small physician practices, and rural health centers. Provide coordinated public and private incentives and subsidies to equip these providers with the same capabilities available at large, urban practices. Accelerate the adoption of certified electronic health records (EHRs), ensure interoperability of software applications, and promote participation in community-wide health information exchange initiative to improve care for low-income populations.
- Recommendation 4: Develop an IT-savvy health care workforce. Direct the chancellors of the California State University and the California Community College systems to develop curriculum and training certification programs to ensure that California has sufficient health care workers trained in the effective use of health IT.
- Recommendation 5: Develop a statewide emergency health IT infrastructure. Prepare California for a state of emergency by financing a statewide health IT infrastructure with the capacity to retrieve and exchange lab and pharmacy information. The networks would be a foundation for an eventual statewide health information infrastructure to support patients, providers, and other important public health, research, and health industry requirements.
- Recommendation 6: Develop a telehealth and telemedicine system to improve health care access for rural and underserved communities. Create an action plan to develop, staff, and maintain a statewide, broadband telemedicine network. Such an effort should be multidisciplinary drawing on the strengths of the state's academic medical centers, business schools, and other relevant disciplines.
- Recommendation 7: Adopt and implement national and state health IT standards. Employ the state's purchasing power to require those who develop, purchase, and use health IT systems to adopt uniform standards to promote the flow of secure information. Endorse national standards where they exist; forge ahead with state standards where there are none.
- Recommendation 8: Coordinate the actions of all state agencies and programs to leverage health it to improve access, quality, and affordability of care. Direct the Department of Health Services in its administration of Medi-Cal and other programs, the Department of Managed Health Care, and other state agencies to advance the health IT agenda articulated in the eHealth Action Plan. Encourage CalPERS to pursue the same agenda. Coordinate state policies and incentive programs with those of the private sector.
- Recommendation 9: Align public and private sector actions to innovate and transform health care. Create mechanisms for engaging the private sector in developing innovative health IT solutions and work with them to improve the health care system. Recognize that the state government cannot do it alone.
- Recommendation 10: Create a social investment fund to support and sustain health care innovation and transformation through health IT in California. Focus the fund's investments on health care innovation and transformation for the public benefit of the residents of California. These investments should seed the key actions of the governor's eHealth Action Plan and stimulate the private marketplace to accelerate its investments in health IT.
Connecticut
A January 30 AP release entitled "Connecticut program launched to store and share medical records electronically" describes an initiative led by Rep. Nancy Johnson and Goernor M. Jodi Rell.
A privacy concern was raised:
Christopher Phelps, a policy advocate at the Connecticut Public Interest Research Group, said such programs should protect consumers' private information by requiring the disclosure of any security breaches, and should allow patients to opt out of having their information shared.
A response by Dr. Kevin Carr, stated: " the new electronic system could provide additional privacy safeguards because it would track each time that a patient's information is accessed, something not usually in place in today's paper-based, record-keeping systems."
Representative Johnson last Fall also introduced on of the current HIT bills
Delaware
Through its Delaware Health Information Network, it is creating a state-wide infrastructure for data exchange.
Florida
Health Information Infrastructure
The Florida Health Information Infrastructure site has complete information on their deliberations. This is a state-wide approach coupled with Medicaid reform and integrates both plan and regional initiatives.
- Follow this link for the Health Information Infrastructure home page.
- Follow this link for meeting information and supporting documents.
- Follow this link for a document on physical security of health information
- Follow this link for a May draft of the FHIN architecture (PDF)
- Follow this link to the November FHIN Architecture - version 6 (PDF)
- Follow this link to a 2006 NCSL interview with Rep. Holly Benson
Privacy and Security Work Group
Medicaid
Florida has an aggressive Medicaid reform agenda.
Federal Legislation
- United States Code Home Page.
- 42CFR - Public Health.
- 42CFR Part 431. State Organization and General Administration
- 42CFR Part 431.306. Relese of Information
- 45CFR Part 164. Security and Privacy[summary]. See 164.512 on disclosure required by law and 164.508 on provider communication concerning care and treatment
State Legislation
- Chapter 327. Vessels. See 327.352 and 327.353. Tests for alcohol, chemical substances, or controlled substances; implied consent; refusal
- Chapter 395. Hospital Licensing and Regulation
- Chapter 397. Substance Abuse Services. See 395.501 on confidentiality of records and 3025 on prohibition of release of PHI for soliciation or marketing the sale of good sand services
- Chapter 400. Nursing homes, home health, hospices
- Chapter 408. Florida Center for Health Information and Policy Analysis
- Chapter 456. Health Professions and Occupations; General Provisions
- Chapter 765. Advance Directives
Georgia
State Government
Governor Sonny Perdue today signed an executive order creating the Health Information Technology and Transparency Advisory Board. The board will advise the Georgia Department of Community Health (DCH) on the best practices for encouraging the use of electronic health records and establishing a statewide strategy to enable health information to be readily available and transparent.
- Follow this link for the press release
- Follow this link to the executive order
Summary:
- A Health Information Technology and Transparency Advisory Board to advise the Department Community Health in applying industry best practices for facilitating and encouraging the use of electronic health records and in establishing a statewide strategy that will enable health information to be available across the full continuum of care
- Board shall consist of twelve members, who shall be appointed by the Commissioner of the Department of Community Health to serve a term of two years ending June 30, 2008.
- Provide leadership for a coordinated effort across the state to achieve health information exchange;
- Encourage the use of electronic health records, that recognize interoperability standards as
- identified by the secretary of the U.S. Department of Health and Human Services;
- Promote the security and privacy of health information;
- Conform with nationally recognized interoperability standards for exchanging health
- information;
- Promote marketplace transparency within the health care industry through the development of information to the consumer of health care regarding the cost and quality of health care; and
- In developing such information, the board shall utilize recognized quality standards developed through a multi-stakeholder initiative.
Health Plan Initiatives
Personal Health Record initiatives announced. Georgia's largest health insurer plans to offer its members a personalized medical record that can be accessed over the Internet. Blue Cross and Blue Shield of Georgia just unveiled "the personal health record" and said it will be available to the insurer's 3.1 million members starting in late August. Kaiser Permanente, meanwhile, is planning to roll out an electronic health record in Georgia's Gwinnett County this week. All 286,000 of Georgia's Kaiser members will be able to use it starting September 8. The Blue Cross personal health record will be loaded with claims data, test results and other information from each participating health care provider the patient sees, Blue Cross said. Adoption rate may be somewhat slow if the past is prologue, however: In New York, about 38,000 of Empire Blue Cross's 5 million members have decided to set up personal health records since it was first offered last year (from FierceHealthIT)
Idaho
56-1054. HEALTH QUALITY PLANNING. (1) It is the intent of the legislature that the department of health and welfare ("the department") promote improved quality of care and improved health outcomes through investment in health information technology and in patient safety and quality initiatives in the state of Idaho
Indiana
Regenstrief is arguably the leader in heatlh information exchange supporting health care transformation.
Pay-for-Performance
Illinois
On July 13, 2006, Governor Rob Blagojevich signed an executive order creating a Division of Patient Safety within the Department of Public Health. The primary role of this division is to consolidate efforts to eliminate medical errors. The order also encourages widespread adoption of e-prescribing by 2011 through a study of needs and barriers to realizing such adoption.
Follow this link to the executive order
Follow this link for the press release
Kansas
http://www.ksgovernor.org/healthPlanning/workgroups_hpf.shtml
Kansas Roadmap
http://www.governor.ks.gov/ltgov/healthcare/items/Roadmap.pdf (April, 2006)
http://www.governor.ks.gov/ltgov/healthcare/items/KansasHITBrief.pdf (Briefing draft, January 2006)
Kansas Executive Order - http://www.governor.ks.gov/executive/Orders/exec_order0414.htm
Kentucky
Follow this link for a June 15, 2006, Government Health IT article
An August 24, Government Health IT posting suggests that the original model for a health information bank is undergoing modification. It states that the rfp initally issued (with 10 responses, according to the article) will be withdrawn and replaced with a more expansive plan that may involve health debit cards and insurers.
Louisiana
The mission of the Louisiana Healthcare Redesign Collaborative (Collaborative) is to develop, and oversee the implementation of, a practical blueprint for an evidence based, quality driven health care system for Louisiana. This blueprint will serve as a guide to health care policy in Louisiana and for the recovery and rebuilding of health care in the hurricane-affected areas of the state. The initial mission of the Collaborative is to develop and submit to the U.S. Department of Health and Human Services a comprehensive system-wide Medicaid Waiver and Medicare Demonstration proposal for parishes of the Greater New Orleans area, which is Region 1 of the Louisiana Department of Health and Hospitals (Jefferson, Orleans, Plaquemines, St. Bernard), that will guide the rebuilding of its health care system.
Follow this link to the state home page
Follow this link to the HHS home page
Follow this link for an article on the effort from Health IT World
Follow this link for a discussion from Moderh Healthcare funded by PWC
Follow this link for the 20-page PWC Report summary
On November 3, 2006, the New Orleans Times-Picayune published an article claiming the costs for the state's health care redesign program could be $500 million dollars over projects made only a few months ago. The redesign plan aims to cover at least 80 percent of the estimated 127,000 people in the New Orleans area who lack insurance, and also would expand Medicaid coverage statewide to children, pregnant women, the disabled and people with serious mental illness. The numbers were unveiled to a legislative committee, which was the first chance for several state lawmakers to examine the state's plan to vastly expand the availability of health insurance in the New Orleans area.
- Follow this link for a Nov 3 2006 Time-Picayune article
HHS HIE Contract
Medicaid
Recovery Act
KaiserNetwork.org (April 26) states that the Louisian Recovery Authority and PriceWaterhouseCooper are recommending a new public hospital be built in Baton Rouge and managed by LSU. This controversial action is motivated by population shifts. - Follow this link for the 246-page report (pdf)
Other Items
May 2, 2006. Blue Cross Blue Shield of Louisiana has chosen ZixCorp's PocketScript system for a state-wide pilot involving 500 physicians.
Maine
A Junuary 27 iHealthbeat article summarises state-wide efforts in Maine organized through the Maine Health Access Foundation. According to this posting, the MHINT project is scheduled to move from the planning and development phase to the implementation phase in 2007, with completion scheduled for 2010. Initial funding for the health information exchange project came from a public-private partnership of four organizations: the Maine Health Access Foundation, the Maine Quality Forum, the Maine Center for Disease Control and Prevention and the Maine Health Information Center. Additional development funding came from Anthem, as well as hospital systems, private foundations and the federal government.
Links can be found at:
Massachusetts
Follow this link for the announcement and description of Governor Romney's plan
Follow this link for a Heritage Foundation critique of the Massachusetts Plan
Minnesota
RWJ reports that Minnesota Gov. Tim Pawlenty (R) announced a new pay-for-performance program that would set optimal care standards in four major health care areas and reward doctors who reach the quality targets. The program, called QCare, will affect all individuals covered by a state health program, including state employees and those in MinnesotaCare or Medical Assistance. The plan aims to set a quality standard for care in four areas: diabetes, hospital care, preventive care and cardiac care. The program aims to ensure that 80% of diabetes patients receive optimal care by 2010, according to Pawlenty. Providers' quality measurements will be posted online at Minnesotahealthinfo.org.
The plan was developed by a bipartisan group of physicians, state officials, hospital and business representatives, insurers and other health providers. According to Pawlenty, the plan will save the state and private health insurance companies more than $150 million annually. Pawlenty put the program into effect on Wednesday via an executive order, the Pioneer Press reports (Salisbury, St. Paul Pioneer Press, 8/1/06).
Follow this link for the press release
Follow this link to the executive order
Privacy and Confidentiality
Follow this link for the Minnesota e-Health Initiative home page
Follow this link for a comprehensive 2003 Minnesota privacy matrix comparing HIPAA with Minnesota statutes
Follow this link for the HealthPrivacy Project's May 2002 summary of Minnesota Law
Follow this link to the legislation Minn Stat 144.335
Follow this link to Minn State 144.651 Patient Bill of Rights
Follow this link for a patient-oriented data privacy statement example
Follow this link to Minn. Statute 72A.497. This is part of the Minnesota Insurance Fair Information Reporting Act
Follow this link for a planning document pertaining to the State's HIPSC initiative
Health IT Initiatives
Minnesota e-Health Initiative: Roadmap and Preliminary Recommendations for Strategic Action: A Report to the Minnesota legislature. Minnesota Department of Health, January 2005. This is a thoughtful, 55 page summary based on the ONC Framework for Strategic Action. It includes a number of one-year goals.
Rural Health:
From HIMSS (3-August-2006): The Minnesota Health Department has landed a $1.3 million grant from the state's e-Health Initiative to implement and develop EHRs in rural areas. The grant program, authorized by the 2006 Minnesota Legislature, is designed to support healthcare providers and public health agencies in rural and medically underserved areas of the state that frequently cannot afford the conversion from paper to electronic records, said Minnesota Commissioner of Health Dianne Mandernach.
The grant program requires three or more unrelated healthcare organizations in a community to work together. Communities that receive grants must provide $1 of financial or in-kind match for every $3 of state funding received. The program's goals are to increase use of electronic health records and to support the ability of different healthcare organizations to electronically exchange health information for patients who get care from different providers. The new statewide grant program is part of the Minnesota e-Health Initiative's goal to improve health-care quality, increase patient safety and reduce costs through information technology
Missouri
Health Information Technology
Governor Matt Blunt's Health Information Task force is charged with delivering a report by July 1, 2006. By executive order, the task force is charged with:
- Reviewing the current status of health care information technology in the state
- Addressing potential technical, scientific, economic, security, privacy and other issues related to the adoption of interoperable healthcare informaiton technology
- Evaluating the cost of using interoperable healthcare informaiton technology
- Identifyin private resources and publi/private partnerships for funding
- Exploring the use of telemedicine
- Recommending best practices to promote the adoption of interoperable healthcare information technology.
Commercial Plans
The April 27, 2006 issue of Health Data Management reports that Blue Cross Blue Shield of Missouri (Anthem) is offering claims data (medical and pharmacy) to emergency department physicians. The pilot is directed at three St. Louis area hospitals (St. Anthony's, St. Johns, St. Louis University). (link to article)
New Hampshire
This site appears to be the most definitive site for eHealth information in the state.
Prescription Drugs - eRX
Prescription Drugs - Legislation
Pharmaceutical industry vendors are suing to argue against New Hampshire's House Bill 13. This bill is the first state or federal effort to limit commercial use of physician-identifiable data. Some firms (e.g., Verispan, IMS Health) collect these data and sell to drug manufacturers. Their reports show the specific drugs, and the amounts of such drugs, prescribed by given physicians. Some claim such data helps in recalls and other services. According to the New Hampshire Business Review, the stated purpose of the New Hampshire Legislature in enacting Law 328 is to reduce the cost of health care.
New York
HIT
May 24, 2006: Governor Pataki announces $52.9 million in awards to further health information technology in the state.
- Follow this link for the press release and a listing of the awards.
- Follow this link for overall comments on FY05 budget
- Follow this link for the Health-e Links New York Project
- Follow this link for Round Two funding announcement
New York City:
April 26: Mayor Michael R. Bloomberg and Department of Health and Mental Hygiene(DOHMH ) Commissioner Thomas R. Frieden today fulfilled a pledge from the Mayor’s campaign and State of the City by announcing that the City has appropriated $27 million to help provide 1,000 New York City Doctors with electronic health records (EHR) systems by 2008. The City’s contribution is being matched by an additional $13 million contributed by the community health centers participating in the program. EHR systems improve the quality, efficiency and safety of medical care. Joining the Mayor at the announcement at the Institute for Urban Family Health (IUFH) was Neil Calman, MD, President and CEO of IUFH and a member of the Executive Committee of the newly launched Primary Care Health Information Consortium. The consortium is made up of 30 community-based primary care networks, which see more than 500,000 patients at 150 sites in the City’s most underserved communities.
Rochester
North Carolina
This is a visionary executive order that was crafted over a decade ago and led to NCHICA and many other efforts within the state. The product of these efforts is one of the few that emerged from the "CHIN" era that has not only survived, but prospered.
Tennessee
The Cover Tennessee Initiative was featured in the April 18 Wall Street Journal (front page)
Quoted from the article:
[People] in the program only get coverage up to $25,000 for health expenses annually, and only $15,000 of that can go to hospital bills. If she becomes seriously ill or has a major accident, [they will] be just as vulnerable as [they were] before. [They will] have to either pay the bills herself or ask the hospital for charity care.
The limits put Tennessee in sharp contrast with Massachusetts and California, two other states that are part of the U.S. trend toward reconsidering universal coverage. Plans in the two states envision people paying more of their own medical bills at first, in exchange for protection against catastrophic costs.
In an interview, Gov. Bredesen says he listened to focus groups and queried blue-collar folks, such as a waitress at a waffle restaurant, to devise his plan. "They weren't interested in buying insurance for catastrophic events. They wanted access to the emergency room next month, access to the pharmacy next month," he says. "Let's give people what they want instead of what some advocate says they want."
The governor says the working poor can't afford $2,000 deductibles, and he questions whether Massachusetts and California can pay for their more-ambitious plans.
Health Information Tennessee
The Tennessee Department of Health has a comprehensive web site from which to access their data sources.
Legal and Regulatory
- follow this link for the HealthPrivacy.org TN legal summary (2002)
- Tennessee Title 63: Professions and the Healing Arts
- Tennessee Title 68: Health, Safety, and Environment
Public Health
- Follow this link to reportable diseases
- Follow this link for a 2004 report on HIV/AIDS
- Follow this link for a state 2004 report on HIV/AIDS
Quality
Follow this link for the AHRQ National Healthcare Quality Report for TN
Medicaid
eHealth Council
On June 1, Governor Phil Bredesen appointed members to the eHealth Advisory Council chartered through Executive Order 35.
- Follow this link for the press release
- Follow this link for the press release concerning the Executive Order
Quoting from the press release:
"By design, the Council includes sixteen members representing Tennessee’s provider community, employers, regional health care information organizations, payers and consumers. The executive order calls for this Council to create a plan to promote the use of electronic medical records by health care stakeholders across Tennessee and to identify obstacles to the implementation of effective health information infrastructure. The Council will be called upon to advise state government on how to more effectively promote the successful adoption of EMRs. One of the Governor’s primary goals for this Council is to offer constructive paths to minimize and eliminate duplicative efforts while leveraging innovation."
Members are:
- Antoine Agassi, Nashville
State of Tennessee
Chairman of the Governor’s eHealth Advisory Council - Peter Dudley Greaves, Lebanon
HCA Healthcare, Senior Enterprise Architect - Denise D. Wood, Collierville
FedEx Corporation, Corporate Vice President and Chief Information Security Officer - David H. Sensibaugh, Kingsport
Eastman Chemical Company, Director of Integrated Health - Marlin Clifford Chapman, Smyrna
Nissan North America, Director of Human Resources, Compensation and Benefits - Linda Eskind Rebrovick, Nashville
Dell, Vice President Health Care - Dr. William R. Stead, Nashville
Vanderbilt University Medical Center, Associate Vice Chancellor for Health Affairs & Chief Information Officer - David C. Guth, Nashville
Centerstone, Chief Executive Officer & Co-founder - Dr. David R. Reagan, Mountain Home
Carespark RHIO, Chairman of the Board
James H. Quillen VA Medical Center, Chief of Staff - Alan Leon Hill, Knoxville
Innovation Valley Health Information Network
Executive Director ClearPath Group - Robert Steven Gordon, Collierville
Mid-South eHealth Alliance, Former Chairman of the Board
Baptist Memorial Health Care, Executive Vice President & Chief Administrative Officer - Jana Lynn Skewes, Signal Mountain
Shared Health, President & CEO - Bradley Steven Karro, Nashville
Caremark Rx, Inc., Executive Vice President - Vicky Gregg, Chattanooga
BlueCross BlueShield of Tennessee, President & CEO - Dr. Winnie Ruth Toler, Franklin
State of Tennessee, Bureau of TennCare, Chief Network Officer - Dr. Andrea D. Gelzer, Hartford, CT
CIGNA HealthCare, Senior Vice President Clinical Public Affairs - Elisa D. Parker, Franklin
Pilkenton Real Estate Co., Affiliated Real Estate Broker
Texas
General Information
- Governor's Executive Order on Health IT (October 9, 2006)
- Legislative web site
- Medicaid web site
- Department of Insurance Web site
- Texas Windows on Government site
- U.S. Census State Quickfacts
- State sponsored site for comparing prices and quality
Legislation
- HB 2470 (2005) for funding emergency medical services
- Emergency Trauma care payment (HB 3588, 2003) (HB 2470, 2005 ) (SB 1188, 2005).
Texas Statewide Coordinating Panel
- Follow this link for the Statewide Health Coordinating Council home page
- Follow this link for the Texas Health Information Technology Advisory Committee page
Mental Health Report
Follow this link to the Mental Health Transformation Web site www.mhtransformation.org
A February 2005 landmark report documents the economic and human costs of failing to prioritize mental health care and proposed a comprehensive agenda affecting the 4.2 million Texans who live with mental illness, their families, and the public.
A November 2006 report by the Mental Health Transformation Workgroup to the Senate of TexasCommittee on Health and Human Services entitled "The Future Mental Health Systemin Texas"
Summary 2005 findings and recommendations include:
- Mental illness is costing the state up to $16.6 billion per year in lost productivity and family revenue
- The additional burden on state and local taxpayers is at least $1.5 billion per year
- Texas ranks 49th in per client spending on services for mental health care
- Fully restoring the mental health benefits under the Children's Health Insurance program
- Improving public safety by diverting non-violent offenders with mental illness to treatment rather than jailRestoring population guidelines for mental health system services
- Creating purchasing cooperatives for mental health services
- Boosting federal Medicaid funding of mental health servicesRemoving restrictions on the use of cutting-edge psychotropic drugs
The senate report includes the following policy initiatives for consideration:
- Recognizing that early intervention and recovery are the policy direction for mental health services across agencies in the state.
- Requiring the Mental Health Transformation Workgroup to develop and assess screening tools and models for early detection of mental health problems in individuals, including children and adolescents.
- Developing interagency behavioral health data sharing protocols and coordination requirements to achieve efficient and effective care.
- Requiring the Mental Health Transformation Workgroup to develop, pilot and present recommendations for standardized definitions, training and contracting requirements for behavioral health services to the Senate Health and Human Services by November 1, 2008.
- Requiring the Mental Health Transformation Workgroup to develop a report about the return on investment of mental health services, including the cost effectiveness of behavioral health interventions in emergency rooms and in adult and juvenile justice systems as well as assessments of average daily school attendance and dropout rates in schools where behavioral health interventions are and are not used or were previously not used, by November 1, 2008.
- Developing common metrics and outcomes measures related to behavioral health interventions for state agencies which provide behavioral health services.
- Requiring the Mental Health Transformation Workgroup to submit a report to the Senate Health and Human Services Committee on the progress made related to mental health transformation and the strategies in this report by November 1, 2008.
Health Care System Integrity Partnership
On October 9, 2006, Gov. Rick Perry issued an executive order creating a new public-private partnership that will further efforts to create a secure electronic medical records system, arm consumers with the ability to comparison shop for health care and provide a more robust health insurance market for small employers. Quoting from the press release:
Perry said the executive order will lead to better use of information technology in health care, empower consumers with information about the price and quality of care provided at specific institutions, and encourage more small employers to provide health plans for their employees.
The directives in the executive order are among the recommendations of the Health Information Technology Advisory Committee, which was established by legislation the governor signed in 2005.
The executive order lays the foundation for a new public-private partnership, the Texas Health Care System Integrity Authority, which is charged with developing a network for the secure electronic exchange of medical records. Serving on the Authority will be representatives of those who have a stake in the health care system: consumers, employers, providers, payers and government agencies.
The current paper system, which experts estimate accounts for 25 percent of health care costs, severely hampers a doctor’s ability to know patients’ history, what existing conditions they have, or what medicines they are allergic to when they arrive at the emergency room.
Perry noted that an electronic medical records system has several advantages, including:
- Allowing doctors to know the best course of treatment.
- Avoiding the duplication of expensive and time-consuming medical tests.
- Giving patients the ability to play a more active role in their own care by accessing their records anytime they choose.
- Providing better security against unauthorized access of patient records.
“We can not only save billions of dollars on the overall cost of health care, we can save countless lives while doing substantially more to protect patient privacy,” Perry said.
The Health Care System Integrity Authority will also be charged with developing recommendations on how to make health insurance more accessible to small employers and how to empower consumers with information from both providers and insurers about the cost and quality of care provided in physicians’ offices and hospitals.
Perry also announced that starting today Texas patients will have better access to price and quality information through a new feature on www.texashealthoptions.com/compare .
At this web site, which is hosted by the Texas Department of Insurance, consumers can compare prices, as well as the average length of stay and mortality rates for certain procedures. They also can look at health plan benefits side by side, research various physicians and hospitals, and find a wealth of other information that will help them make better decisions about their health care.
Finding ways to contain health care costs is imperative, Perry said, because they are growing at an unsustainable pace.
For example, over a recent eight-year period, the average annual insurance premium for a Texas family doubled from $5,000 to 10,000. Many small businesses are being forced to reduce benefits, and more families turning to government programs to meet their health care needs.
In Texas, state government is already the largest single payer of health care costs. Health care spending in the current state budget rose $11 billion dollars over the previous two-year budget cycle – a stunning 20 percent increase driven in large part by rigid federal mandates.
“The result of all of this is a health care system that is growing wildly unstable, that offers less care at a higher price and that will eventually collapse without substantive reform,” Perry said. “Today Texas is taking steps that will help us win the long-term challenge of preserving our healthcare system, improving patient safety and the quality of care, and lowering costs so more small employers can afford healthcare plans for their workers.”
Vermont
The Vermont Blueprint for Health, Chronic Care Initiative, will put Vermont at the forefront of health care - advancing innovative solutions and providing support to help doctors and patients effectively manage chronic disease.
The goals of the initiative are three fold:
- First, it will rehabilitate the exisiting system by enhancing cooperation between providers, patients, the community, and insurers - encouraging them to work in concert instead of isolation.
- Second, it will give health care providers the support they need to deliver world class care through the provision of improved information technologies and training in chronic care issues.
- Third, it will optimize treatment options for people with chronic disease by creating information networks that allow them to tap into community resources, classes, and activities to improve quality of life. Recognizing that improving care for people with lifelong health conditions is an important part of any health care reform effort, Governor Jim Douglas has included the Vermont Blueprint for Health Chronic Care Initiative in his Prescription for a Healthy Vermont
Virginia
Follow this link to executive order 29 (2006)
In connection with $1.5 m of legislative funding, the Council's responsibilities include:
- Establish an interoperability framework drawing from and complying with the standards of the Healthcare Information Technology Standards Panel (HITSP).
- Build public-private partnerships to increase adoption of electronic medical records for physicians in the Commonwealth and encourage vendors and entrepreneurs to build to the Certification Commission for Healthcare Information Technology standards.
- Identify areas where health information technology can lower health care costs for the Commonwealth of Virginia as an employer and health insurer.
- Provide an interim report to the Governor by October 15, 2006 recommending amendments to the state budget that will spur the development, implementation, and ongoing use of Virginia’s health information technology infrastructure.
- Recommend funding and strategies necessary to encourage long-term sustained adoption and interoperability of health information technology in the Commonwealth in a report to the Governor by December 1, 2006.
- Review and approve proposals to fund public-private pilots designed to increase the adoption of electronic medical records out of funds appropriated for that purpose.
- Examine other issues as may seem appropriate.
Washington
- Follow this link to Patty Enrado's article
- Follow this link to the report (PDF) entitled "Washington State Health Information Infrastructure: Final Report and Roadmap for State Action"
On December 1, 2006, Washington State unveiled its health information intrastructure roadmap. One unique aspect of this report is its reliance on a health information "banking" model espoused by William Yasnoff and others. The report calls for the State to invest $8 million to $11 million to complete the initial design work and implementation plan, and partly fund between six to eight initial implementation sites for health record banks. Among the other aspects of the state's infrastructure that make it unique are:
Washington State has established HIEs: Whatcom County Health Information Network in Bellingham connects community health services, payers, hospitals and physician offices via an Intranet and Inland Northwest Health Services connects Spokane-area hospitals and regional medical services.
Twenty-five percent of ambulatory providers, more than 50 percent of small physician offices and 88 percent of the state’s 24 largest multi-specialty clinics have EMR systems.
Wisconsin
The minutes of these meetings contain a wealth of information about state and national initiatives. The executive order is also a model for others.
Legal Frameworks
- A generic framework document created by the TN Volunteer e-Health Initiative
- others to follow
Overview
Issues to be covered on this site include:
- User and organizational accountability (C-1)
- Individual rights (C-2)
- Disclaimers, warranties, limitations of liability (C-3)
- Insurance issues (C-4)
- Enforcement (C-5)
- Implementing user agreements (C-6)
